"Nearly two years after she returned home in the arms of
her father, Justina Pelletier was back in the spotlight Thursday,
speaking in a small, slightly shaky voice about the 16 months she spent
in state custody, much of it in a locked psychiatric ward. Justina,
whose case drew national attention to the power of medical
professionals to override parental rights, said she remains outraged
that she was placed in state custody in 2013 after Boston Children’s
Hospital accused her parents of interfering with her care.........“I’m
very angry, and I just don’t understand how this happened, and I just
really don’t want this to happen again to another family,” said Justina,
who was with her parents, two of their attorneys, and a family
spokesman from the Christian Defense Coalition. She was taken into state custody three years ago after Children’s
determined that her many health problems were the result of psychiatric
issues and that her parents were pushing for her to undergo unnecessary
treatment. The Pelletiers vehemently disagreed, pointing to the opinion
of doctors at Tufts Medical Center, who said Justina suffers from
mitochondrial disease, a rare genetic disorder that affects how cells
produce energy. On Thursday, Justina criticized her treatment at Children’s Hospital.
“They really treated me badly,” she said, looking older and more mature
than when she was last publicly seen, being carried into her home by
her father after being released from state custody. “They didn’t really
care. It was awful.”.........Lou Pelletier said he is suing Children’s Hospital
because he doesn’t want other parents of children with complex medical
problems to fear losing custody if they have to seek emergency medical
care at a hospital. “This is not about revenge,” Lou Pelletier
said. “This is about making people accountable and making the medical
community think twice before they take actions that can do damage to a
child and a family that can be irreversible.”.........Justina was being treated at Tufts Medical Center for
mitochondrial disease when her parents brought her to Children’s
Hospital with gastrointestinal problems in 2013. Doctors at
Children’s concluded that she was a victim of medical child abuse as a
result of her parents interfering with her care. A juvenile court
judge, relying on the opinion of those doctors, removed Justina from her
parents’ custody. She was placed in a locked psychiatric ward at the
hospital, where, her parents say, she was denied an education and not
allowed to attend Mass. Children’s Hospital said that patients and their families have access to the hospital’s multifaith chaplains and tutors. Justina’s
case became a rallying point for Christian conservatives and parent
activists, who accused the hospital and state officials of violating the
Pelletiers’ rights to make medical decisions for their daughter. Under
mounting pressure, the same judge who had placed Justina in state
custody returned her to her parents’ care in June 2014, saying there was
“credible evidence that circumstances have changed” and that her
parents “have been cooperative and engaged in services,” including
individual therapy for the teen and family therapy."
https://www.bostonglobe.com/metro/2016/02/25/parents-justina-pelletier-sue-boston-children-hospital-for-negligence/jCrlgTQBVikJtokEnlFBmN/story.html